Summer Transition Becomes Easier with Consistent Routine Establishment
As the sun shines brighter and the days grow longer, the summer season has officially begun, marking a significant change in the lives of many. For the author and her 12-year-old daughter, Angel Juliana, this transition has been less distressing this year, thanks to a carefully tailored summer routine designed to maintain balance and prevent regression associated with Angelman syndrome.
Juliana, who has been diagnosed with Angelman syndrome, a genetic disorder characterised by developmental disabilities, has always found the change in routine during summer breaks challenging. However, this year, the author has made adjustments to ensure a smoother transition, taking into account Juliana's specific needs.
The summer routine, which includes a calendar review, workboxes, reading, math, and water fun, is task-tailored to prevent regression due to Angelman syndrome. Repetition is crucial for how Juliana learns, so the summer work will focus on many skills she has been practicing at school.
This summer is especially important as Juliana is making the big leap to middle school. To prepare her for this transition, the author has had to alter the summer schedule in the past, but this year, the schedule has remained consistent to avoid difficulties getting back on track after summer fun.
One of the changes this year is that Juliana will attend her favourite special needs camp online. The camp offers both face-to-face and online sessions, and the author has chosen the online version to ensure safety during the ongoing pandemic. The author remains cautious about large crowd activities for Juliana due to the pandemic.
Despite the changes, Juliana seems to understand that school has ended and the family is shifting to a home routine. The change in routine no longer triggers anxiety for Juliana, a welcome relief for the author.
Marisa Wexler, a researcher or advocate connected to Angelman Syndrome, often contributes to raising awareness or research on this genetic disorder. However, specific detailed public information about her exact role is limited.
Juliana's maturity and age may contribute to her improved reaction to the summer transition. Regardless, the author is committed to ensuring that Juliana has a fulfilling and educational summer, balancing work and play to create a routine that suits her needs.
As the summer unfolds, the author looks forward to watching Juliana grow and adapt, embracing the challenges and opportunities that come with each new day.
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